Finding the right mobility equipment for Duchenne muscular dystrophy patients can be a time-intensive and frustrating process. To help take the guesswork and hours of research out of the equation for families and caregivers, CureDuchenne announced today it has launched a comprehensive interactive website called the “Durable Medical Equipment (DME) Guide” to help caregivers navigate the best equipment for the various stages of their loved ones needs.
“With a commitment to supporting the Duchenne community with best practices in care until a cure is found, we are thrilled to offer the online DME Guide to families,” said Debra Miller, founder and CEO, CureDuchenne. “While parents and caregivers are determined to find the equipment that will help keep their loved ones active in any way possible, we are determined to help them make the best decisions by providing them with all the resources they need in one place.”
As the progression of Duchenne begins to rob individuals of muscle strength and ambulation, mobility equipment can offer realistic means for those with Duchenne to maintain participation in daily living activities and preserve as much independence as possible.
CureDuchenne’s online DME Guide will be updated regularly to provide current information on equipment utilized by individuals living with Duchenne. The site includes information on mobility devices, orthoses, home equipment and respiratory devices. Additionally, the site features helpful links and downloadable information about equipment and proper use, and educational videos about equipment use produced by CureDuchenne.
CureDuchenne is the leading nonprofit dedicated to extending and improving the lives of 300,000 boys worldwide who have Duchenne muscular dystrophy, a degenerative disease with no known cure. CureDuchenne uses an entrepreneurial venture philanthropy model to fund impactful research and accelerate human clinical trials. Through its CureDuchenne Cares program, CureDuchenne provides confidence to families seeking valuable resources, trains physical therapists and other health professionals on new standards of care and provides hope, support and empowerment to the Duchenne community. For more information, please visit www.cureduchenne.org.